My Hero Band #8

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| Hero Family #8 |
![]() All professional photos courtesy of Heather Prather ![]()
When my daughter Avery was three-months-old, she grew a beautiful belly. Every day our family would rub and kiss her "budda belly." Avery grew into her belly a bit by her second birthday in September of 2009. She even sang, danced, laughed, played, and potty-trained with all of the other kids! She has always been "happy-go-lucky," whimsical, and oh-so sweet. Little did we know that all of these personality traits would have to aid Avery through the most difficult months of her life. ![]() That strength given by so many took us to the next lap of our journey: the surgery. After a long 6-hour surgery on Monday, December 21st, Avery's left kidney was removed along with a tumor having the circumference of a football and 9 other tumors. After further analysis, Avery was diagnosed with a Stage III Wilms Tumor with an unfavorable histology and diffused anaplasia. Our journey continued for the next 8 months as Avery began aggressive radiation and chemo treatments. Avery and I lived for the next 6 weeks at the Ronald McDonald house in Pittsburgh Children's Hospital where Avery received daily radiation and chemotherapy. About 3 weeks into our radiation treatments, another tumor was found which required additional weeks of radiation. Those 6 weeks were difficult because of the amount of time we spent away from my husband, Tom, and my 7-year-old daughter, Audra, who were only able to visit us on weekends. Avery missed her best friend, her sister Audra, terribly. It was so difficult for both of the girls to understand why they were apart. Luckily, my mother, my aunt and my mother-in-law were able to spend many of those weeks living with us in Pittsburgh to keep us company. After our radiation treatments were finished, Avery and I made weekly visits to Pittsburgh for out-patient and in-patient chemotherapy treatments that continued through August of 2010. In addition to the visits for chemotherapy, Avery had to visit Pittsburgh Children’s Hospital for many blood and platelet transfusions as well. To complicate matters even more, every time Avery spiked a fever she had to be rushed to Hamot Hospital in Erie and transported via ambulance to Pittsburgh for monitoring. Our life for those 8 months, and even now, has changed so much. Avery’s small body could not fight infection due to her compromised immune system, so we rarely left our home except to go to a hospital. All of the usual 2-year-old activities had to be put on hold. However, Avery’s spirit never dwindled. Since our chemotherapy treatments ended in August, we have been very slowly returning to a normal life. Her energy is returning, just as her peach fuzz hair slowly returns awaiting the wearing pig-tails like her big sister. Our trips to Pittsburgh continue, though, and we live in fear that the tumors will return. Every CT scan paralyzes us. But Avery’s bravery and persistence keeps us going. I have come to believe Avery's "happy-go-lucky," whimsical, loving, and oh-so sweet personality have gotten her through these past year of her life. She inspires me and so many others by her unwavering bravery and spirit.
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